This is a blog about my baby girl, Amber Marina Lily and our journey of her devastating diagnosis of Trisomy 18, also known as Edwards Syndrome.
My little warrior queen, my little fox… I have no regrets. I love you to the moon and back.
*Please note.. pages are still being updated and our early story is not yet completely written here yet. T18 is a complex diagnosis and what is published here so far is mostly my ‘journal’. This year has been hectic and traumatic, this is just my personal story in my own words as I feel ready to tell it…
To read about what Trisomy 18 / Edwards Syndrome is please follow the link on the ‘About’ tab.
- January 2023
- December 2022
- August 2022
- June 2022
- March 2022
- February 2022
- January 2022
- December 2021
- Glasgow Hospital… the ‘Walk’
- It’s OK to not be Ok
- Ambers 1st birthday approaches… My letter to my daughter.
- Friday 17th June 2022
- What is Trisomy 18/Edwards Syndrome?
~ Hippocrates
Amber, The Trisomy 18 journey of 'my little fox' 